This is my beautiful ten year old girl, Summer Lauryn. When she was only three years old, “ANGI” became the difference between life and death for her. Let me explain.
About seven years ago, Summer was diagnosed with lymphangioma behind her eye. While this was a HUGE BLOW… requiring many (scary, largely unsuccessful) trips to CHKD and the Childrens Hospital in Boston, we eventually discovered that her condition was totally manageable. (Thank you to our acupuncturist, Bryon Jones.
But yesterday, our church was dedicated to a young lady named Meghan. At twenty years old, she lost her battle with “lymphoma”. My immediate thought was how unbelievably thankful I am that Summer’s doctors didn’t diagnose LYMPHOMA instead of LYMPHangiOMA. Just four little letters, but an enormous difference none the less.
There are so many “lessons” to take from this story. If you knew anything about Meghan, her faith, her fighting spirit… you would know that I could NEVER do the “story” justice. But, my first thought was, “What a difference four little letters can make.”
Truthfully, in life – as in business – it is always the small things that make the difference. Take three minutes to watch that 212 degrees movie (again)…. And remember the difference one degree – or four little letters – can make.
Elaine B. says
Great story! Something to be thankful!
Rachael Judy says
Man, what a wake-up call!! How touching and how true! Your little Summer is a precious and blessed little girl 🙂
Lindsay says
Definetly true. I too have a lymphangioma behind my eye. I’m 23 now, was diagnosed at 3, born with the condition. I was researching “orbital lymphangioma” on the internet and this came up. I don’t feel so alone now 🙂
Laura A. says
My nephew was just diagnosed (today actually) with lymphangioma behind his eye, he is 2 months old now but it has been visible since birth. The news came as a relief because we were concerned that his condition could have been lymphoma.
I am interested in what type of treatment your daughter received. the Dr.’s have told my sister that there wasn’t really anything they could do because of the location…a possibility of shots when he gets older maybe. Please email me with any info you would like to share.
jamie G says
My sister Laura A. commented on my sons diagnosis with lymphangioma aprox. a month ago or so. Things have been crazy for us with this unexpected condition, only now am I getting up the courage to get on the internet & try to find out more. I guess you could say, I’m afraid of what I might find & that my hopes will be dashed even more. I would love to get in contact with you and find out more about those treatment options that have been sucessful for your daughter. Please email me with any information you might have. Thanks